News

According to the European's Medicines Agency's  Committee for Medicinal Products for Human Use (CHMP) , a higher rate of death and disease complications in recent trials means benefit-risk balance no longer favourable. T he CHMP opinion will now be forwarded to the European Commission, which will issue a final legally binding decision applicable in all EU Member States. Read the full publication here: https://www.ema.europa.eu/en/news/ema-confirms-suspension-sickle-cell-disea

We stand with everyone affected by  inherited blood disorders  such as  Sickle Cell Disorder, Thalassaemia, and Rare Inherited Anaemias .  It’s a global opportunity to recognise the challenges and celebrate the resilience of individuals and families affected by inherited blood disorders. These conditions are lifelong and often misunderstood — yet they affect thousands of families across the UK. Awareness, early testing and access to specialist care can make all the difference

Sickle Cell Suffolk marked this important day. Living with  Sickle Cell Disorder  affects more than just the body — it can deeply impact mental health too. Chronic pain, fatigue, health complications, frequent blood transfusions and long hospital stays can leave people feeling anxious, low or isolated. And being misunderstood; especially by medical professionals, only adds to the struggle. At  Sickle Cell Suffolk , we’re reminding our community that  mental health matters .